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Sexuality and Disability Resources

Books and Videos

 

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Available for loan through the Area 2 Board
 


Book Seller Links

Amazon.com  http://www.amazon.com/

The Avocado Press www.avocadopress.com/

Barnes & Noble  http://www.barnesandnoble.com/

Paul H. Brookes  http://www.pbrookes.com/

CWLA Press  http://www.cwla.org/pubs/

Diverse City Press  http://www.diverse-city.com/

Fanlight Productions (videos) http://www.fanlight.com/

High Tide Press http://www.hightidepress.com

SNP: Special Needs Project  http://www.specialneeds.com/store/

Woodbine House  http://www.woodbinehouse.com

Learner Managed Designs, Inc.  http://www.lmdusa.com

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Behavioral Approaches

Hingsburger, Dave J. Changing Inappropriate Sexual Behaviors. Diverse City
     Press, 1999.
     Video of a Hingsburger conference presentation in Redding. 
     Approximately45 minutes.

     i to I: Self Concept for People with Developmental Disabilities.  Mountville:
     Vida Publishing, 1990.
     Video of conference presentation in Redding.

     If You Do That One More Time: Behavioral Approaches.
     Diverse City Press, 1999.
     Videotape of a Hingsburger conference presentation in Redding.
     Two videos, approximately 45 minutes. 

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Catalogs

Program Development Associates (800)543-2119 or http://www.disabilitytraining.com

Channing Bete Company (800)628-7733 or http://www.channing-bete.com            

YAI - National Institute for People with Disabilities http://www.yai.org

ACT - Advocating Change Together http://www.selfadvocacy.com

James Stanfield Company Inc. http://www.stanfield.com

Diverse City Press Inc. http://www.diverse-city.com

ETR Associates  http://www.etr.org

Teach-a-bodies www.teach-a-bodies http://www.teach-a-bodies.com

Anatomical Chart Company (800)621-7500 http://www.anatomical.com

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Consent to Sex

Baladerian, Nora J. FACTS: Forensic Assessment of Consent to Sex.  Culver
     City: Spectrum Institute, 1998.
     An interviewing instrument to assess consent to sexual relationships
     through an inventory of the nature and consequences of the sexual act
     of intercourse or other penetration for adults with cognitive
     impairments.

YAI Consent Assessments.  "General Evaluation Procedures for Determining
     Verbal Consent" and "The Tool for Assessing Informed Sexual Consent 
     Through and Evaluation of Responsible Sexual Behavior."

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The Criminal Justice System

The State Coordinating Committee on Crime Victims with Disabilities.  
     California Resource Guide:  Directory of state Programs Assisting Crime
     Victims with Disabilities.  Governor's Office of Criminal Justice Planning,
     2002
                  Press here to view and download the entire text

Woods, Timothy O. First Response to Victims of Crime. Washington: U.S.    
     Department of Justice Office of Justice Programs, 2000.
     A handbook for law enforcement officers on how to approach and help
     elderly victims, victims of sexual assault, child victims, victims of domestic
     violence and survivors of homicide victims.  

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Personal Care

Department of Developmental Services.  Sharon's Story: An Artist's Life.
     Sharon is an artist first and a woman with disabilities second.  In the video
     she talks about her personal care needs and what she needs from the
     people who work for her.  Video, 12:15 minutes.

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Policy Guidelines

Protocol for Personal Care.  By Catherine van Mossel for Community Options.
     To order, contact Angela Burnell, 250-472-8665 or 250-472-8608 or
     angelab@highspeedplus.com

Relationships & Sexuality.  Regional Residential Services Society and Nova
     Scotia Department of Health Community Health Promotion Fund. 1998.
     A guide to policy for individuals with intellectual disabilities and their
     residential service providers.

Human Sexuality Handbook.  The Association for Community Living Inc., 1994.
     Springfield, MA
     A useful, positive and proactive resource for individuals with developmental
     disabilities and the staff who work with them.

Guidelines for Handling Abuse.  Surex Community Services: Ontario, Canada.
     Produced to educate and guide agency staff when dealing with
     allegations of abuse towards a client.

Person Centered Planning Guide for Building Healthy Social Sexual
     Relationships. The Committee on Sexuality, 2000

Technical Assistance Manual for Mandated Reporting: Suspected Crimes
     Against Victims with Disabilities.  Easter Seals of Superior CA, 2000.

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Safety and Abuse Prevention

       books

Anderson, Orienda H. and Shirley Paceley. Genesis: In the Beginning Breaking the
     cycle of Sexual Abuse. Homewood, IL: High Tide Press. 
     A practical, insightful guide for parents, teachers and caregivers who care  
     about the prevention of the high incidence of sexual abuse of children with
     disabilities. Includes signs of abuse, early intervention strategies, teaching
     skills and guidance for parents.

     Safe Beginnings: Protecting Our children from Sexual Abuse. Homewood, IL:
     High Tide Press. 
     This guide offers age appropriate techniques for parents and providers who   
     serve preschool children with disabilities. Learn to detect the signs of abuse
     and how to respond.

Bissada, Angela, Psy.D., Leslie Scher Miller, Ph.D., Ann Marie Wiper, M.S.W.,
     Michele Oya, Psy.D.  Keeping Our Children Safe.  California State Council
     on Developmental Disabilities program Development Fund, Cycle XXII.
     2000.
     A booklet for caregivers and provider of children with developmental
     disabilities to reduce the risk of abuse.

Blum, Gloria, MA and Barry Blum, MD. Feeling Good About Yourself: A guide for
     People Working with People Who Have Disabilities or Low Self-Esteem.
     Homewood, IL: High Tide Press.
     Ideas and hands-on activities to teach self-awareness, gender roles, 
     expressing feelings, sexual information, decision making and assertiveness.
     Includes tips for training staff and parents as educators, and creating
     individual educational plans. Prevent victimization and help individuals
     strengthen their relationships with friends, loved ones, co-worker, and
     others.

Briggs, Freda.  Developing Personal Safety Skills in Children with Disabilities.
     Baltimore: Paul H. Brookes Publishing Co. 1995.
     Guide to empowering children with disabilities to avoid injury, abuse, and
     related emotional and psychological problems. Includes curriculum.

 Hingsburger, Dave J.

     Behavior Self.  Quebec:  Diverse City Press, Inc.,  1996.
     Using behavior concepts to understand and work with people with  
     developmental disabilities.
  
     Read staff book review

     Black Ink.  Quebec:  Diverse City Press, Inc.,  20066.
     Practical and clear guidelines for dealing with reports of sexual abuse from people
     with intellectual disabilities.
  
     Read staff book review

     do? be? do?.  Quebec:  Diverse City Press, Inc.,  1998.
     What to teach and How to teach people with developmental
     disabilities.

     First Contact:  Charting Inner Space Quebec:  Diverse City Press, Inc., 
     2000.
     Lessons in humanity, humility and human services.

     Four Feet Tall  Quebec:  Diverse City Press, Inc.,  1998.
     A book for people of all ages about Williams Syndrome and a simple
     lesson that takes a lifetime to learn
.

     Four Sight: The Disability Community Contemplates Fate, Future, and Fear.
     Several writers share a wealth of experience living and working in the
     disability community. They lay bare our society's tolerance of violence
     against persons with disabilities, and describe how we must tackle these life
     and death issues.

     I Openers.  Vancouver:  Family Support Institute Press,  1993.
     Parents ask questions about sexuality and children with developmental
     disabilities.

     i to I: Self Concept and People with Developmental Disabilities. Mountville:
     Vida Publishing.  1990.

     Just Say Know.  Quebec:  Diverse City Press, Inc.,  1995.
     Understanding and reducing the risk of sexual victimization of people with
     developmental disabilities.  

     Read staff book review

     a little behind.  Quebec:  Diverse City Press, Inc.,  2000.
     Articles for challenge, change and catching up.

     Power Tools. Quebec:  Diverse City Press, Inc.,  2000.
     Thoughts about power and control in service to people with
     developmental disabilities.

     a real nice but.  Quebec:  Diverse City Press, Inc.,  1999.
     Articles that inspire, inform and infuriate.

Hingsburger, Dave J. and Ruth Ryan.  real eyes.  Quebec:  Diverse City Press,
     Inc.
     Lessons in humanity, humility and human services.

Hingsburger, Dave J., and Sobsey, Montgomery and Wilkins.  Four Sights:  The
     Disability Community Contemplates Fate, Future and Fear.  Quebec: Diverse
     City Press, 2001.
     Short stories and essays.

Hingsburger, Dave and York Behavior Management Services.  The Long
     Journey Home.  Quebec:  Diverse City Press, Inc.,  1997.
     A series articles, guidelines, and assessments about transition planning
     for deinstitutionalization of people with developmental disabilities.

Hoyle, Sally G.  The Sexualized Child in Foster Care.  Washington, DC:  Child
     Welfare League of America, Inc.  2000.
     A Guide for Foster Parents and Other Professionals.

Sack, David A.  No More Secrets No More Shame.  Washington, DC: PLA
     Press.1990.
     A guide to understanding sexual abuse and emotional disorders.

Schwier, Karen Melberg.  Idea Man.
     A delightful way for young readers to appreciate differences and learn to
     look beyond the surface in others.

Schaefer, Karen. What Only a Mother Can Tell You about Child Sexual Abuse.
     Washington, DC:  Child Welfare League of America, Inc.  1993.
     A valuable resource for parents of child victims of sexual abuse and for
     professionals who work with victims and their families.

Sobsey, D.  Violence and Abuse in the Lives of People with Disabilities:  The End
     of Silent Acceptance?  Baltimore:  Paul H Brookes.  1994.

Soucie, Michael, Astra Milberg, and Dave Hingsburger.  In:difference.  Quebec:
     Diverse City Press, Inc.  2001.
     Read staff book review

      videos

Department of Developmental Services.  Wellness is Catching.
     Three videotapes, each with 5 short lessons for people with DD on how to
     take care of yourself.  Topics include going to medical appointments,
     medical rights and maintenance, aging, fitness, street safety, helping
     others, living with medical problems, taking care of self, emergencies,
     friends, healthy minds, and eating well.

Diverse City Press.  Hear Here.
     A training video for police on victimization o of people with developmental
     disabilities. 34:53 minutes.


     No! How.
     A training video by consumers for consumers on rights, responsibilities,
     and sexual abuse prevention. 9:30 minutes.

Drama Extraordinaire.  Just Say Know.  Far Northern Regional Center and Shasta County 
     Arts Council, 2004.
     Just Say Know is an original play that addresses sexual victimization of people with
     developmental disabilities. The production was written by Natalie Valencia, Director of
     Drama Extraordinaire, and inspired by a book of the same title written by Dave    
     Hingsburger. Drama Extraordinaire is a Butte County theatre troupe that integrates  
     actors with and without disabilities. The project was funded by a grant from the
     State Council on Developmental Disabilities. Available to loan through Area II Board    
     or purchase (DVD or video), call Mary Ann at 530-222-4791.


Hingsburger, Dave J.  Ring of Safety. Diverse City Press, 1999.
     Video of conference presentation.

     Tall Tales. Diverse City Press.
     An audio cassette lecture of Dave Hingsburger speaking on self concept and
     people with developmental disabilities.

MacNamara, Roger. An Abuse-Free Life. Freedom From Abuse Abuse Prevention
     Specialists. 5 DVDs and facilitator's guide.
     Learn proven methods for ensuring an abuse-free life for persons with     
     disabilities. Drawing on Roger MacNamara's experience, insights and lifelong
     dedication to the cause, these videos share reality-based experiences of
     service providers who have successfully applied these approaches.

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Sexuality Information 
     for people with developmental disabilities (see below for parents,
          staff and research)

          Books

Abby, Nancy and Elizabeth Raptis Picco. Entering Adulthood: Coping with Sexual
     Pressures. Santa Cruz, CA: Network Publications. 1989
     A student workbook.

McKee, Lyn, Winifred Kempton, and Lynne Stiggall.  An Easy Guide to Loving
     Carefully for Men and Women.  Santa Cruz: ETR Associates.  1987.
     A well-illustrated book which explains birth control and sexual health in
     very simple language. Requires reading skills.

Newport, Jerry and Mary.  Autism-Asperger's & Sexuality: Puberty and Beyond
      Arlington, Texas: Future Horizons Inc.  2002.
      This book tackles dating, relationships, and sexuality issues for individuals
      with Asperger's Syndrome and autism. The book emphasizes the
      importance of self-confidence and practice.

Rogers, Judith, and Molleen Matsumura.  Mother to Be.  New York:  Demos
     Publications.  1991.
     A guide to pregnancy and birth for women with physical disabilities

Siegel, Peggy C.  Changes In You. Richmond, Virginia:  Family Life Education
     Associates.  1991.
     A clearly illustrated, simply worded explanation of the changes of puberty
     for girls.
  Includes a Parents' Guide.

     Changes In You.  Richmond, Virginia:  Family Life Education
     Associates.  1991.
     A clearly illustrated, simply worded explanation of the changes of puberty
     for boys.
   Includes a Parents' Guide. 

Spelman, Cornelia.  Your Body Belong to You.  Morton Grove, Illinois:  Albert
     Whitman & Company. 1997. 
     Teaches touching boundaries to children using simple ideas in simple
     language. 

World Institute on Disability.  Sticks and Stones.   Edited by Marsha Saxton, foreword by Grace Mattern,
    New Hampshire Coalition Against Domestic and Sexual Assault.
    A collection of fifty stories about facing abuse and violence. The compelling stories are told by a diverse group
    of people with disabilities, as well as family members, services providers, and other allies, and cover a wide
    range of mistreatment and recovery experiences.

          videos

Hingsburger, Dave J. and Sandra Haar.  Finger Tips.  Quebec:  Diverse City 
     Press, Inc.,  2000.
     Teaching women with disabilities about masturbation through
     understanding and video.  Includes training manual and video.

Hingsburger, Dave J.  Hand Made Love.  Quebec:  Diverse City Press.
  
  A guide for teaching about male masturbation through understanding and
     video.  Includes training manual and video, about 17 minutes.

     Under Cover Dick.  Quebec:  Diverse City Press, 1996.
     A guide for teaching men with disabilities about condom use through
     understanding and video.  Includes a training  manual to be used with
     video, 8:15 minutes. 

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     for parents and staff

Anderson, Orienda H.  Doing What Comes Naturally?   Homewood, IL: High Tide Press.      
     2000. This book first challenges the beliefs and attitudes of family members,
     educators, and MR/FF professionals concerning the sexuality of people with
     developmental disabilities. It then guides them in meeting the social-sexual needs of
     the people they love and serve. Overflowing with passion and filled with wisdom, this
     book provides a philosophical, yet practical, definition of sexuality. It is a stage for
     both the dramatic and scientific, the funny and sad, the victorious and defeating
     aspects of the sexuality of people with developmental disabilities.
Read book review

Baxley, DiAnn, Anna Zendell, and Jeanne Matich-Maroney. These guides were developed as part of
     a grant from the Florida Developmental Disabilities Planning Council, in collaboration with the
     University at Albany, Center on Intellectual Disabilities. The materials are designed to open
     dialogue between school and home on the topic of providing sexuality education to children and
     adolescents with intellectual or developmental disabilities. The resources are copyrighted by the
     FL DD Council, but are free to download. Please contact the FL DD Council at the address
     listed on the inside cover of each document for mass reproduction.

Being Sexual:  An Illustrated Sex Education Series for Developmentally
     Handicapped People.  East York, Ontario: Sex  Information & Education
     Council of Canada.  1992.

Bissada, Angela, Miller, Leslie Scher, Wiper, Ann Marie, and Oya, Michele.  Keeping Our
     Children Safe.  California State Council on Developmental Disabilities Program
     Development Fund Grant.  2000.
     Children with developmental disabilities are at risk for abuse. Keeping Our Children
     Safe is a booklet for caregivers and service providers of children and adolescents with
     developmental disabilities. This booklet was written to help you learn more about the
     problem, how to communicate with children about abuse, and where you can go for
     help. Use this link to receive a free copy: http://www.uscuap.org

Brown, G. T., Carney, P., Cortis, J.M., Metz, L.L., and Petrie, A.M. Human
     Sexuality Handbook:  Guiding People Toward Positive Expressions of
     Sexuality.  Springfield:  The Association for Community Living. 1994.

Cyprian, Judy.  Teaching Human Sexuality.  Washington, DC: CWLA Press.
     1998.
     A guide for parents and other caregivers.

Fegan, Lydia and Anne Rauch. Sexuality and People with Intellectual Disability. 2nd ed.
     Baltimaore, MD: P.H. Brookes Publishing Company. 1993.

Harber, Mary and Dave J. Hingsburger.  The Ethics of touch.  Quebec: 
     Diverse City Press.  1998.
     2 videos and a training manual about establishing and maintaining
     appropriate boundaries in service to people with developmental
     disabilities.

Hatcher, Robert A. Sexual Etiquette 101 and More. Decatur, CA: Bridging the Gap
     Communications. 1995.
     Antioch students wanted to create a sexually safe and comfortable environment
     for the college's entire student body and staff. With courage, strength, and
     devotion, Antioch College has implemented a simple policy that can be adopted by
     anyone. The Antioch policy focuses on sexual safety and violence.

     The Quest for Excellence. Tiger, CA: Bridging the Gap Foundation. 1993.

Hingsburger, Dave J.  I Contact:  Sexuality and People with Developmental
     Disabilities.  Mountville: Vida Publishing.  1991.

     I Openers.  Vancouver:  Family Support Institute Press.
     1993.
     Parents ask questions about sexuality and children with developmental
     disabilities.

Koch, Joanne Barbara. Growing up. Evanston, IL: Parents InTouch Project. 1991.

Maksym, Diane. Shared Feelings: A Parent Guide to Sexuality Education for Children,
     Adolescents, and Adults who have a Mental Handicap. North York, Ontario, Canada:
     G. Allan Roeher Institute. 1990.

Mckee, Lyn, and Virginia Blacklidge M.D.  An Easy Guide for Caring Parents:
     Sexuality and Socialization.  Planned Parenthood of Contra Costa, Inc.
     1981.
     Works with a companion book for young adults.  See above, An Easy
     Guide to Loving Carefully.

Moise, Lotte.  As We Grew Up With Barbara. Fort Bragg:  Cypress House.
     A common sense book and personal account of her daughter's growth into
     an adult relationship.


     Barbara and Fred: Grownups Now. Fort Bragg: Cypress House,
     1998.
     Living fully with a disability is the theme of this mother's book about her
     daughter growing up. It is the sequel to As We Grew Up With Barbara.

Monat-Haller, Rosalyn Kramer. Understanding and Expressing Sexuality: Responsible 
     Choices for Individuals with Developmental Disabilities. Baltimore, MD: P.H. Brookes
     Publishing Company. 1992.

National Guidelines for Health Education and Risk Reduction Activities. Guidelines for
     Comprehensive Sexuality Education: Kindergarten -- 12th Grade. New York, NY.  
     1992.

Parker Edwards, Jean and Thomas Ikins. Just Between Us. 1988.
     A social sexual training guide for parents and professionals who have concerns for
     persons with developmental disabilities.

Patterson, Patricia Miles. Doubly Silenced: Sexuality, Sexual Abuse and People with
     Developmental Disabilities. Madison, Wisconsin: Wisconsin Council on Developmental 
     Disabilities. 1991.

Schwier, Karen Melberg.   Couples with Intellectual Disabilities Talk about
     Living and Loving.  Rockville, MD:  Woodbine House.  1994.
     An inspiring collection of profiles of people who have found meaningful
     intimate relationships. 

Melberg, Karen, and Dave Hingsburger.  Sexuality: Your Sons &
     Daughters with Intellectual Disabilities. Baltimore: Paul H. Brooks
     Publishing Co,2000.
     An inspiring book on how to raise a proud and confident son or daughter.

US Department of Health and Human Services, Public Health Service. Guidelines for 
     Health Education and Risk Reduction Activities. Washington, D.C. 1995

          videos

Pacer Center, Inc.  I am A Beautiful Person -- Sexuality and Me.  1996
     13:35 minute video for parents of teens with disabilities.  Teens and young
     adults discuss sexuality issues.

Special Purpose Films.  Learning to Talk Sex When You'd Rather Not.
     Excellent for training about people with developmental disabilities, their
     parents and care providers.  Shows unstaged scenes of men and women
     learning safety, appropriate private and public behavior, and human
     anatomy. 30 minutes.

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      General

Orleman, Jane.  Telling Secrets: An Artist's Journey Through Childhood
     Trauma.   Washington, DC:  CWLA Press.  1998.
     A woman explores childhood trauma using her paintings and dream
     journal.
     Read staff book review

The Boston Women's Health Book Collective.  Our Bodies, Ourselves.  New
     York:  Simon & Schuster.  1998.
     A complete guide to women's health issues written by and for women.

     Research

Bradley, Kelly, M.A. and Joan Petersilia, Ph.D. Crimes Against People with
     Developmental Disabilities:  A Case Study of Orange County, CA. 2002.
     This research reveals that people with developmental disabilities experience
     both traditional forms of victimization (rape, physical assault, robbery) and
     unique forms of victimization (manipulation and neglect) due to their being
     part of a special population. 

Haseltine, Florence P., Sandra S. Cole, and David B. Gray.  Reproductive
     Issues for Persons with Physical Disabilities.  Baltimore:  Paul H. Brooks
     Publishing Co.  1990.
     Read staff book review

Parker, Gillian.  With This Body: Caring and Disability in Marriage. Buckingham:
     Open University Press.  1993.
     Examines the views both of younger people who become disabled after
     marriage and of their partners who care and support them.

    

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Teasing

Hingsburger, Dave J.  The "Are" Word.  Quebec:  Diverse City Press.
  
  Helping people with intellectual disabilities to deal with bullying and teasing.

 


Treatment

     for people with developmental disabilities

Baladerian, N.J.  The Sexual Assault Survivor's Handbook:  For People with
     Developmental Disabilities and Their Advocates.  Saratoga:  R & E
     Publishers.  1991.

Kehoe, Patricia, Ph.D.  Something Happened and I'm Scared to Tell.
     Seattle:  Parenting Press, Inc. 1987. 
     A book for young victims of abuse.
    
 Read staff book review

     for professionals and staff

Baladerian, Nora J.  Abuse of Children and Adults with Disabilities: Risk Reduction
     and Interview Guidebook for Parents and Other Advocates.  Culver City: 
     Spectrum Institute, 1993.

     Interviewing and Treatment of Elder Abuse Victims with Cognitive and/or  
     Communications Impairments.  Culver City:  Spectrum Institute, 1998.

     Interviewing Skills to Use With Abuse victims Who Have Developmental  
     Disabilities. Culver City: Spectrum Institute, 1998.

     Survivor: For People with Developmental Disabilities who have been Sexually
     Assaulted.  Culver City: Spectrum Institute, 1985.
     Book 1: for those who read best with few words.

     Sexual Assault: A Survivor's Handbook for People with Developmental
     Disabilities.  Culver City: Spectrum Institute, 1985.
     Book 2: For people with disabilities and their advocates.
    
     Survivor: For People with Developmental Disabilities who have been Sexually
     Assaulted.  Culver City:  Spectrum Institute, 1985.
     Book 3: For Family Members, Advocates and Care Providers. 

Blasingame, Gerry D.  Clinical Assessment Tools:  Self Report & Observer Report
     Surveys.  Oklahoma City:  Wood 'N' Barnes.  
     Appropriate for adolescent and adult mainstream and developmentally
     disabled population.  Includes five abuse-related inventories.

     Developmentally Disabled Persons with Sexual Behavior Problems: Treatment,
     Management & Supervision.    Oklahoma City;  Wood 'N' Barnes.
     Compilation of theory and practical strategies that focus on shaping
     professional practice for community-based treatment, management, and
     supervision of persons with developmentally disabilities.

Caprio-Orsini, C  Visual Reality: People with Developmental Disabilities Healing
     from Trauma through Art.  Eastman: Diverse City Press.

Kehoe, Patricia, Ph.D.  Something Happened and I'm Scared to Tell.
     Seattle:  Parenting Press, Inc. 1987. 
     A book for young victims of abuse.
    
 Read staff book review  

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Updated Wednesday January 27, 2010

 
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